Teenager's Clubfoot

 So, what do u expect from a clubfoot teenagers?

For some, there will be drama..some don't..but

Hmm..as for Dania..

1. Her left foot (normal) is still 1.5 size larger than the right one. Last year we bought 2 pair of school shoes with different sizes for her. We need to replacement her prep shoes as well before the school starts.

2. Yes her right calf is still thinner than normal. I always remind her to watch her weight as her right calf may not able to carry heavy body.

3. She had episodes of 'sakit kaki' when she was busy with her school activities. Oh ya, for your info, Dania is currently at one of the boarding school in Cyberjaya. Her dorm for this year is located at the upper floor. During this pandemic, we are not allowed to help her to bring all of her luggage to the dorm. She need to settle by herself, probably her friends helped her.

4. Last year was disaster. She was in pain and I cant help her that much. According to Dr Amnuay, he didnt see any problem of her feet. She need to do a lot of stretching. Yes, we had conference meeting with Dr Amnuay in Bonda Pengetua's room.  I guess her dorsiflexion is stucked at 0.  Dania was permitted to do her feet xray as per instructed by Dr Amnuay. I bought her so many painless support item while waiting for her school to allow this xray appointment.

5. Obviously, she is lazy to do stretching at school. Currently she need to be reminded and warned at home . She knew the consequences of not getting the feet stretched but being teenagers, it will never interest her.

So, my advise to you, keep on doing the stretching as regular as you can. Ask them to climb up the stairs, do some stretching using heel and sole. Make it as a routine, make it as a habit. Good habit last longer.

till my next post..:)

Dania's 1st masterpiece on Clubfoot

 

Hi & Salam..

Another entry for this year..

Yg mana ada printer, bole print and baca..

Ini adalah salah satu project yang anak Clubfoot saya hasilkan untuk assignment sekolah.

She said menitik air mata bila buat resdarch pasal kaki sendiri..

Allahuakhbar..

Ramai ibu2 diluar sana menangis dan meraung melihat anak yg baru lahir berkeadaan kaki sebegini..betul bukan?

Percayalah...clubfoot is treatable..kena betul caranya, kena jumpa org yg seangkatan untuk memberikan nasihat yg baik dan berguna..Insya Allah,,

Doakan terbuka hati Dania until menjadi pakar Ortho kanak2 yg baik dan pakar mengenai clubfoot.

One day in later life, bole share experience anak2 and make him or her proud of our achievement.

Aaminn

2021 Virtual World Clubfoot Day

It has been a while...I know..

But...how is this Covid-19 pandemic treat u so far?

Many has stop their treatment..

Many has skipped their follow up..skipped the casting series..

Many has defer their tenotomy n defer their total treatment to later date..

Our doctor in Bumrungrad has started his tele-medic appointment so that many of us can share their progress with him without flying to Bangkok..

Whatever phase you are, May Allah set ease your effort and give you courage to keep the battle alive..Insya Allah..

Alhamdullilah, as stated earlier, we had our 3rd June online meeting for the remarkable day.

We are so honour to have Dr Amnuay to join the meeting.

Thank you endlessly to Sal & Ess for working so hard to do the testing before the day and making sure all went smooth as we planned.

Pro Ponseti vs Non Ponseti believers

If pro vaccine has anti-vaxx, we do have non Ponseti believers..
10 years ago, I never thought of this.
But here we are, there is a group of parents who thinks that casting & bracing is a barbaric method and bracing limit the child movement.

Now they come out with tapping, ADM and God know what more to come.
There is also individual creating  another group which they claimed to collect funds for further research on Clubfoot treatment.

OK.

What I should say here, you can do 1,000 of research but mind you, our late Dr Ponseti has spent half of his life to do LOTS of research and experiment on the clubfoot treatment.
I believe all medical research takes longer time and it is expensive!!

Believe me, clubfoot IS NOT a painful journey.
It is a real precious journey that make you and your child even stronger !
Tak ada sebab nak sedih sebab anak bersimen, anak berbracing.
La Tahzan!!
Ada sebab semua ini berlaku..

Look at her!!!!

Persediaan untuk rawatan Ponseti Method

Doctor pakar sendiri confirm anak anda mengalami clubfoot, talipes, ctev whatever they call it.

Yang penting bukan nurse, or bukan org lain yang confirmkan.

Mula2 yg perlu anda lakukan,

1, AMBIL GAMBAR KAKI ANAK DARI PANDANGAN ATAS dan CATAT TARIKH

untuk memudahkan kelak anda perlu membuat perbandingan selepas simen dibuka untuk simen berikutnya.

2. LOG IN GOOGLE, CARIK INFO BASIC MENGENAI CLUBFOOT, BANDINGKAN KAKI ANAK DENGAN GAMBAR DI DALAM INTERNET.

until memudahkan pemahaman mengenai Clubfoot.

3. KENAL PASTI JENIS CLUBFOOT ANAK ANDA DAN TANYAKAN PAKAR MENGENAI RANCANGAN YANG TERBAIK UNTUK ANAK 

lebih memudahkan until mengenal pasti sama ada Pakar Ortho tersebut mempunyai kemahiran mengenai kaedah Ponseti.

Sekiranya beliau ada menyebut tentang SPLINT atau Postero Medial Release PMR iaitu pembedahan yang sancta invasive atau lebih teruk beliau tidak melayan persoalan/pertanyaan anda, saya sarankan anda perlu mencari doctor pakar padetrik Ortho yang lebih baik.

Kalau doctor tersebut tidak mampu nak terangkan, maka beliau bukan doctor yang bagus until merawat anak anda.

4. AKHIR SEKALI, BANYAKKAN BERDOA SEMOGA PERJALANAN RAWATAN INI BERJALAN LANCAR DAN DIPERMUDAHKAN. 

Selain doa, Ibu sertã ayah dan juga keluarga terdekat perlu memberi kata2 positif dan juga kesabaran yang tinggi ketika pemasangan simen, penjagaan simen dan juga keadaan anak ketika bersimen.

Nanti sambung lagi.

How to prevent relapse?

Honestly, only God knows...

Tapi kita boleh usaha..

what we did?

We prolong bracing time.
As long as our baby tolerable with the bracing time, continue bracing as long as you can.
We maintain 23 hours for 3-4 months, 16-18 hours for for 4 months juga..
Then when Dania starts walking using knee, baru kami pendekkan 12-14 hours..
Meaning night time 10 hours plus 3-4 hours day time during nap time, or whenever she is not fussy.
Then we all continue night time bracing until she is 5 years old.

So don't get too excited bila doctor sure reduced time or discharged bracing time.
Sebabnya, bila kaki dah start stiff, Anak dah biasa tak pakai brace, dah lasak berjalan, nak pakaikan brace balik memang payah,

So masa baby ni lah kita boleh control bracing time dia.
Ni cara saya lah..Dania pernah relapse masa kat HKL.
Nak start all over balik is too painful..

Doctor hanya recommend bila sepatutnya reduce bracing time and also discharged.
Tapi kita boleh je customised.

Dania started bracing when she was 1 year 2 months old. After 5 cast in Bangkok, she starts wearing Mitchell Brace on 6th week of treatment. Kami bawak je kemana aje kami pergi with her brace ON..

Jangan malu dengan anak pakai brace...

TIPS TO PREVENT RELAPSE : PROLONG THE BRACING TIME !!

Clubfoot Malaysia 2017 Family Day

Alhamdullilah, we just had our 1st Clubfoot Malaysia Family Day @ Agrotek Garden Resort Hulu Langat. Cantik tempatnya. Air sungai bersih dan jernih, pemandangan kehijauan, dan remote area. Sesuai kalau plan nak buat team building, family day or gatherings.

Enam keluarga participated, 3 new faces and 3 old friends. This time kami decide nak berkumpul sesama kami tanpa kehadiran para doctor.
Sal & family (siap bawak mak & adik), Munna & keluarga comelnya, Syed & Irfan, Nadia & keluarga dan juga Aidilla bersama Ibu dan anaknya Luqman.

We had borak2 santai, minum petang, then continue borak lagi during BBQ night session.

Bercerita pasal clubfoot takkan habis sebab setiap pengalaman itu berbeza but saya hargai members yang data hadir kerana mereka peka dengan perkembangan anak dan ingin mengetahui lagi apakah langkah seterusnya dari segi penjagaan dan do's & don't.

So the next day, kami Anak senamrobik & sukaneka.

Small gathering tapi meriah.

Boleh belek2 kaki dan bincang apa yg perlu diperhatikan sekiraanya kaki tidak berkeadaan baik.

Kalau advise dlm FB or WhatsApp melalui gambar tau video, payah sikit nak tengok betul2.

So join lah kalau ada peluang, kalau kaki anak dah okay, kita kongsi pengalaman.

Tak guna pon jadi pon jadi silent readers..kan berpesan2 until kebaikan lebih bermanfaat?

Till we meet again ..