Referral

But my doctor said claimed he is using Ponseti method to treat my baby...

sounds familiar?

Yup. ..that was our doctor claimed to us also..

did you ask your doctor why the foot is not responding to the method?

Dr Syikin once told me they have done almost everything to help my daughter's feet but the feet is not responding well..

rupanya2...memang all doctors on that year ARE NOT FULLY trained on Ponseti Method but claimed they practised it...no wonder every appointment we received different feedback from different doctors...

What is the damage?

Relapse, unsuccessful treatment, casting more than 10x, causing hyper extended toes (noticed by Dr Pobseti himself) and took a year to manipulate n casting, and 2 tenotomy has been done.

So lesson is, whenever your doctor claimed they r using the ponseti method, please make sure, you read carefully the protocols stated in Ponseti International before you claimed one to me.

Even you say your brace is also Ponseti claimed brace, hmmm ..think twice..

As I hv not seen Dr Ponseti hold your brace before..so why should I believe you?

I've been in your shoes before and I have faced many challenges before you know.

So don't tell me...'my doctor also practise ponseti'...well after 14 years, I dont think so and I do not agree with you.. 🤷‍♂️

so kalau tanya which doctor yang I boleh recommend, which is the best hospital for clubfoot and what not..

I will tell you NONE in Malaysia..but boleh pergi yang ramai pergi iaitu HUKM, HKL & PPUM.

till then..good luck 

Teenager clubfoot progress

Happy New Year everyone😘💘💘

Entry kali ni nak bercerita ttg clubfoot remaja..yelah kan anak den dah masuk 15 tahun pada tahun 2022 ni..

Agak mengecewakan bila ada yg dah stop brace bila umur anak baru 3 tahun..

Even lah doctor tuh discharge, continue je lah pakai brace sekiranya tiada halangan..

Kalau relapse, tak pasal je kena pasang simen balik...tak ke aniaya anak ?

Ponseti International memang recommend pemakaian brace until umur anak 5 tahun..

Makanya, bila ramai dah tak pakai brace Lepas umur 3 tahun, ramai lah mengadu anak jalan kaki ke dalam (toeing in)

Maaf lah .. Anak sy pakai brace sampai umur 5 tahun..mmg discipline..

Kaki Dania pernah relapse akibat jahilnya doctor dan kami 14 tahun dulu..

So rawatan dah sampai ke Bangkok, takkan nak buatkan kaki anak relapse pula?

Keraskan hati..jalan terus..

Dia pandai buka brace, kita bangun dan pakaikan balik..

Kau culas, kaki cacat balik...nak ke?

It belum lg termasuk culas follow up..

Masing2 ada kekakangan, sy tahu..

Tapi cuba lah selesaikan once and for all..

Kaki anak clubfoot mmg boleh treated and boleh berjalan ya..

Penat dan dah berkali2 cakap..

Tapi ada juga yg lompat bintang bila anak dah start jalan..

Bila dah start rawatan, cara berjalan tuh yg membezakan anak u clubfoot atau tidak..

Ini latest kaki Dania...flatfoot kat normal feet belum hilang...

"beautiful right foot"-Dr Amnuay 2/1

Positional Clubfoot

'tapi puan, saya ada surat doktor yang mengatakan anak saya ada CTEV..'

'puan, anak kaki sy bengkok tak macam kaki baby lain'..

'anak saya dah dipakaikan kasut khas'

'boleh elok ke kaki anak saya?'

'doktor kata anak saya tak perlu simen'

'ohh takpe puan, kaki anak saya sudah pulih'

Allahuakhbar..

Dah berkali saya terangkan perbezaan positional vs structural clubfoot..

yang kami perjuangkan Ponseti Method for clubfoot ini adalah clubfoot yg involved structural kaki itu sendiri. So kalau positional kita tak perlu apply Ponseti Method..

Positional clubfoot keadaan tapak kaki normal dan flexible..

Manakala structural clubfoot, kakinya twisted, rigid, stiff, dan tak flexible.

Sebab tu saya minta gambar upon approval to join Clubfoot Malaysia.

kalau positional tak perlu pening kepala utk baca all the info ttg clubfoot..Sekadar nak tahu rupa dah cukup...Insya Allah u all tak akan lalui process yg lama macam kami..so berlapang dada..

anyway, both positional and structural clubfoot are TREATABLE.

So why buy from anyone else? - MD Orthopedics Mitchell Ponseti Brace

It has been 14 years that I have introduced Mitchell-Ponseti brace to Malaysian community..

Dr Amnuay yang tolong ukur masa tu, kami yang order straight from Iowa, US.

Dulu takde online shopping macam sekarang, and I remember we've  emailed to Brittany and we transferred money or payment was done using credit platform..2 kali je purchase...

Dengan Mitchell brace ni kita tak perlu ukur ngam2..Kita boleh lebihkan 1-3cm..boleh pakai lama sikit..Dania ads 2 braces je  dlm almost 5 tahun pakai..

So hangpa yang konon kene sampuk beli brace brand L yang claim lagi murah dari Mitchell Ponseti, tapi kene ganti selalu tuh nampak gaya dah kene tipu..😂😂

Brace Mitchell ni kita boleh ukur anggaran, and boleh lebihkan dlm 1-3cm..sy perasan ada yang kata terbeli besar..tapi jangan lah memandai yang baby umur 3 bulan u pegi beli size 6 size 10 buat apa??

boleh je baby setahun beli size 1 atau 2 bagi dia pakai sampai lencun...

2-3 tahun lepas saya ada jumpa imitation of Mitchell Ponseti ni yang claim konon dia pon sama bagus macam Mitchell Ponseti brace. Dorang claim effectiveness dia sama..siap dah ada distributor kat Malaysia ni...siap canang kat doktor they have ready stock..hahaha

Saya pon hairan but today, one of my clubfoot experience parents exposed that every single parts of Mitchell Brace ni dah dipatentkan..Maksudnya APA??!!! yang beli brand L tuh umpama beli barang imitation a.k.a barang tiruan..yang mana their testimonial pon boleh kita ragui..

8 out of 10 clubfoot physician in USA prescribed Mitchell Ponseti braces for their patient, so doktor-doktor yang claim tak tau Mitchell Ponseti ni sambung tidur lagi ke macam mana?

Sibuk pulak nak suruh patient pakai Dobbs Bar la apa lah...tapi treatment pon masih ke laut..

Daku bukan taksub tau tapi memang nyata..There is only ONE GOLD STANDARD PONSETI METHOD CLUBFOOT ORTHOTICS which is MITCHELL PONSETI !!

Mitchell Brace ni dah lama dah in the market.. dah patented on 2007 (dorang apply 2004) ..Dania start pakai 2008..

So, as dulu til now, and once again I am firm and confident, Mitchell Brace is the BEST CLUBFOOT BRACE ever!!

Memula hairan juga kenapa MD ni takde wakil jualan in Asia..Now baru faham..even pon dorang tu jauh, delivery timing was just 5-7 days from the date of purchase.

Oklah juga delivery timing dari u beli kat shopper or even I beli telekung dari Siti Khadijah pon 2 weeks baru sampai..

Disclaimer : Saya bukan wakil jualan Mitchell Ponseti ni..tapi saya sangat recommend braces ni..so jangan kene tipu...😉

Iowa Brace

 

Disclaimer : Ini bukan post berbayar..I tak perlu jual brace dan sampai sekarang I taktau price brace ni..I am here to assist you whatever I can..selama ni pon takde yg bayar i untuk buat blog ni..so??

(All photos credit in this post are from clubfoot solution website)

Apa benda pula Iowa Brace ni?

Another brace invented by Americans as improvement of Mitchell Brace. Dr Marcuende is one of the team.

Nak jadi cerita, last year I was waiting for MD Orthopedics to reply me on the issues highlighted by few parents mainly due to delivery leadtime. Yelah masa tuh Pandemic covid 19 ni baru start and delivery banyak delay.

So Ponseti International approached me and introduce me to Mr Todd Becker, the MD of Clubfoot Solutions. He is very humble and very passionate about clubfoot treatment. After few times communicate each other on clubfoot matters,  he sent me about 20 Iowa braces. He would like to distribute to whoever needed it most, and most importantly he wants our feedback.

So I decided to prioritise those who really serious on fixing her clubfoot child but can not afford to buy Mitchell, of course must be the member of Clubfoot Malaysia. I have approached few doctors to give me any contact of those in need.

So kelebihan Iowa Brace?

Ini dari pemerhatian saya as comparison to Mitchell Brace. 

✨ Iowa bar tidak mudah dibuka sendiri. However, ada satu clip ni kalau diletakkan ke lubang bar, ia akan mudah untuk mengeluarkan bar.

✨ Material dia adalah fabric dan selesa sebab ada padding yang bagus. Unlike Mitchell diperbuat dari sintetik kulit yang lembut. 

✨ Agak berat berbanding Mitchell. 

✨ Hanya memerlukan flexbar dan boleh dipakai dlm tempoh masa yg lama.

💕 dikatakan lebih murah dr Mitchell kerana it was mess production tetapi sampai sekarang saya tidak tahu berapa price brace ini.

Tapikan saya tetap prefer Mitchell Brace..😍

saya memang hardcore Mitchell Brace..Yang mana kata Dr Amnuay sendiri kata semua brace sama tuh maknanya korang tak kenal dia. He never condemn any brace but he told me Mitchell Brace is the most wonderful, magical n most effective brace. Teringat ada satu member ni siap copy paste ayat Dr Amnuay bagi kat i..

Semata sebab dia terbeli lain brand nak sedap kan hati...aduhaii 😜

Saya masih ada lagi few more size to give away but kena ikut syarat kelayakan..stok terhad..

Please email me if you are interested..

Kepentingan menyertai Clubfoot Malaysia

First of all..berlapang dada bila kita dapat tahu kaki anak bengkok ke dalam or twisted..

CTEV, Clubfoot, kaki ke dalam etc...

Insya Allah..Niat kita hanya satu IAITU membantu kaki anak kita pulih..

tapi bagaimana?

Haaaaa...ada sebab kenapa Allah izinkan makhlukNya untuk mencipta GOOGLE..

bukan untuk mencari pasal atau perkara yang tak berfaedah..tetapi lebih kepada membantu kita mencari jawapan..

SO LET'S GOOGLE...

Anda semua bertuah kerana banyak website dari Malaysia ada meringkaskan apa itu Clubfoot.

So kenapa saya tak jumpa Clubfoot Malaysia??

Clubfoot Malaysia ni mula2 diperkenalkan pada tahun 2008..

Ada yang masih bersekolah lagi kan masa ni?

Clubfoot Malaysia merupakan satu kumpulan sokongan yang terdiri daripada IbuBapa dari tahun 2008 yang sama2 gigih mencari, mengenali dan juga membuat self-research tentang clubfoot.

Apa yang membezakan Clubfoot Malaysia dsengan kumpulan lain?

Kami Pro-Ponseti.

Testimonial kami dari Ponseti treatment tidak kira dari Bangkok mahupon tempatan.

Kami akan kongsikan segala pengetahuan, pengalaman buruk kami semasa anak kami sendiri menjalani rawatan yang salah untuk dijadikan ikhtibar dan pengalaman yang manis apabila rawatan itu berjaya.

Apa rahsianya kejayaan kami?

Kami strict. Ikut betul2 kaedah rawatan Ponseti method.

Kami baca Ponseti.info/ dan kami bertalu2 membaca dan bertanya kepada doctor yg pakar dlm bidang Ponseti ini. In my case, Saya begitu rapat dan mempunya hubungan yg baik dgn Dr Amnuay.

Saya banyak merujuk pada beliau sekiranya ada referrral kes yang agak rumit.

Alhamdullilah, Dr Amnuay tidak pernah jemu dan tidak lokek berkongsi pendapat.

Kami tak beri harapan palsu.

Kami mengingatkan perkara yang perlu dihindarkan walau pon pedih. Ada yang terasa ada yang terambil hati. Tapi percaya lah, kami hanya mahukan yang terbaik.

Kami tidak memaksa anda tapi kami mahu anda memberi peluang kami memberikan jawapan jujur kami. 

Kami tidak membuat keuntungan atau side income dari blog atau group ini. Gerakan kami seperti NGO-NGO yang lain. 

Kami tidak perlu menjual brace. Namun begitu, kami AMAT menesyorkan pemakaian Mitchelle Brace (yang terbaik setakat ini). Doktor kami di Bangkok sendiri hanya memilih Mitchell Brace untuk frasa bracing...

Tapi memang adakan doctor yang taktau tentang kewujudan Mitchell Brace ni..itu maknanya dia  belom habis study lagi tentang Ponseti Method ni...kesian betul..

So kalau anak2 clubfoot memakai Mitchell Brace atau Dennis Brown boleh lah kami beri pendapat. Yang pakai brace brand lain tuh kami takde pakar untuk dirujuk. Tapikan better u all consider to join kami ..sebabnya kami mmg serious and strict..:)

Kenapa Mitchell Brace ? ini lah brace yang terbaik, FULL STOP!

Bukan semua brace sama?

Penggunaan dan objectives memang sama tetapi keberkesanan, penjimatan Mitchell Brace masih lebih baik dan sangat berkesan. Hey ini Dr Ponseti invent sendiri tauuuu!!

For next post, saya akan cerita serba seikit tentang Iowa Brace yang telah diperkenalkan kepada saya oleh Clubfoot Solution dengan kerjasama Ponseti International.

2021- why we still find issues

From the photo shared by the parents, we found out many has been diagnosed as clubfoot whereby the heels look so fine and in tact. The feet is not twisted at all, they just curl in. They were given a pair of splint to treat the feet...adoiii lah doctor...

Do you know that many countries didn't use splint in correcting positional clubfoot anymore?

Even it is for clubfoot cases, the splint is not effective at all.

Many still thinks clubfoot can be corrected by stretching n massaging the feet. In reality, it is not enough. The tendon is too stiff and the location of the heel bone is abnormal.

We still received complaints where their child's feet slipped out from the brace. Their child can't keep wearing the brace and has been crying all day long for almost every day.

Have u alert what when wrong?

Honestly, bila orang tanya kami, dengan siapa atau hospital mana yg bagus boleh rawat kaki anak says ni? Kami tiada jawapan yg pasti kalau tanya doktor kat sini.

Sudah 14 tahun says mengenali clubfoot tetap saya masih mencari doctor yg Ponseti certified Di Malaysia ni. Sekiranya ada doktor yg berminat ke Iowa bersama saya untuk mempelajari dan hands on Ponseti Metbod, let me know ya.

 Walaubagaimana pon sy tetap suruh ibubapa ini membuat rawatan disini. 

Hakikatnya, kita tidak ada doktor yang benar2 mempunyai testimonial yg consistent in clubfoot.

Even you are with the best doctor, most importantly as the parents, kita perlu cakna dan hadam tentang rawatan clubfoot anak kita ni..

Ramai yang takde gambar anak masa lahir..kenapa ya?

Even anak day start simen masih ada yg belum mengambil gambar before dan after casting. So macam mana kita nak tahu simen kaki anak, ada hasilkan perubahan yg baik ??

So issue yg sama every year...kami tidak tahu apa2 dan ini anak kami yg pertama...so??? 

Ibu ayah, 

Kan ada pak Google...Google lah..banyak info yg kita boleh search...internet bukan untuk baca gossip sahaja atau port kita nak membawang..anak kita perlu perhatian khas ni...

14 tahun dulu saya Google juga ..even pon tak banyak info yg saya jumpa..saya cuba faham dan compare gambar2 yang saya tengok di browser, sama tak dengan kaki anakku?

Baca lah...rajin lahh sikit...kalau bukan kita yang nak tolong ambil tahu pasal kaki anak..siapa lagi?

Ambil lah gambar..sebelum treatment..selalu selfie kan? apalah salahnya amek gambar kaki anak juga..

Join us at FB Clubfoot Malaysia once doctor dah confirm clubfoot, BUKAN positional clubfoot ha..jangan risau kami tak jual product..kami lebih galakkan tukar pandangan, exchange braces, atau apa sahaja yg bermanfaat untuk ibu ayah yg senasib..Insya Allah kami akan bantu bagaimana nak pastikan kita di landasan yg betul semasa rawatan clubfoot anak..

Till next post...

Teenager's Clubfoot

 So, what do u expect from a clubfoot teenagers?

For some, there will be drama..some don't..but

Hmm..as for Dania..

1. Her left foot (normal) is still 1.5 size larger than the right one. Last year we bought 2 pair of school shoes with different sizes for her. We need to replacement her prep shoes as well before the school starts.

2. Yes her right calf is still thinner than normal. I always remind her to watch her weight as her right calf may not able to carry heavy body.

3. She had episodes of 'sakit kaki' when she was busy with her school activities. Oh ya, for your info, Dania is currently at one of the boarding school in Cyberjaya. Her dorm for this year is located at the upper floor. During this pandemic, we are not allowed to help her to bring all of her luggage to the dorm. She need to settle by herself, probably her friends helped her.

4. Last year was disaster. She was in pain and I cant help her that much. According to Dr Amnuay, he didnt see any problem of her feet. She need to do a lot of stretching. Yes, we had conference meeting with Dr Amnuay in Bonda Pengetua's room.  I guess her dorsiflexion is stucked at 0.  Dania was permitted to do her feet xray as per instructed by Dr Amnuay. I bought her so many painless support item while waiting for her school to allow this xray appointment.

5. Obviously, she is lazy to do stretching at school. Currently she need to be reminded and warned at home . She knew the consequences of not getting the feet stretched but being teenagers, it will never interest her.

So, my advise to you, keep on doing the stretching as regular as you can. Ask them to climb up the stairs, do some stretching using heel and sole. Make it as a routine, make it as a habit. Good habit last longer.

till my next post..:)

Dania's 1st masterpiece on Clubfoot

 

Hi & Salam..

Another entry for this year..

Yg mana ada printer, bole print and baca..

Ini adalah salah satu project yang anak Clubfoot saya hasilkan untuk assignment sekolah.

She said menitik air mata bila buat resdarch pasal kaki sendiri..

Allahuakhbar..

Ramai ibu2 diluar sana menangis dan meraung melihat anak yg baru lahir berkeadaan kaki sebegini..betul bukan?

Percayalah...clubfoot is treatable..kena betul caranya, kena jumpa org yg seangkatan untuk memberikan nasihat yg baik dan berguna..Insya Allah,,

Doakan terbuka hati Dania until menjadi pakar Ortho kanak2 yg baik dan pakar mengenai clubfoot.

One day in later life, bole share experience anak2 and make him or her proud of our achievement.

Aaminn

2021 Virtual World Clubfoot Day

It has been a while...I know..

But...how is this Covid-19 pandemic treat u so far?

Many has stop their treatment..

Many has skipped their follow up..skipped the casting series..

Many has defer their tenotomy n defer their total treatment to later date..

Our doctor in Bumrungrad has started his tele-medic appointment so that many of us can share their progress with him without flying to Bangkok..

Whatever phase you are, May Allah set ease your effort and give you courage to keep the battle alive..Insya Allah..

Alhamdullilah, as stated earlier, we had our 3rd June online meeting for the remarkable day.

We are so honour to have Dr Amnuay to join the meeting.

Thank you endlessly to Sal & Ess for working so hard to do the testing before the day and making sure all went smooth as we planned.

Clubfoot Malaysia Family Day - Register now!!

Dear readers,

If you are one of clubfoot parents, please join us Clubfoot Malaysia Family Day 2017!!

Spread the love!!