Teenager clubfoot progress

Happy New Year everyone😘💘💘

Entry kali ni nak bercerita ttg clubfoot remaja..yelah kan anak den dah masuk 15 tahun pada tahun 2022 ni..

Agak mengecewakan bila ada yg dah stop brace bila umur anak baru 3 tahun..

Even lah doctor tuh discharge, continue je lah pakai brace sekiranya tiada halangan..

Kalau relapse, tak pasal je kena pasang simen balik...tak ke aniaya anak ?

Ponseti International memang recommend pemakaian brace until umur anak 5 tahun..

Makanya, bila ramai dah tak pakai brace Lepas umur 3 tahun, ramai lah mengadu anak jalan kaki ke dalam (toeing in)

Maaf lah .. Anak sy pakai brace sampai umur 5 tahun..mmg discipline..

Kaki Dania pernah relapse akibat jahilnya doctor dan kami 14 tahun dulu..

So rawatan dah sampai ke Bangkok, takkan nak buatkan kaki anak relapse pula?

Keraskan hati..jalan terus..

Dia pandai buka brace, kita bangun dan pakaikan balik..

Kau culas, kaki cacat balik...nak ke?

It belum lg termasuk culas follow up..

Masing2 ada kekakangan, sy tahu..

Tapi cuba lah selesaikan once and for all..

Kaki anak clubfoot mmg boleh treated and boleh berjalan ya..

Penat dan dah berkali2 cakap..

Tapi ada juga yg lompat bintang bila anak dah start jalan..

Bila dah start rawatan, cara berjalan tuh yg membezakan anak u clubfoot atau tidak..

Ini latest kaki Dania...flatfoot kat normal feet belum hilang...

"beautiful right foot"-Dr Amnuay 2/1

Kepentingan menyertai Clubfoot Malaysia

First of all..berlapang dada bila kita dapat tahu kaki anak bengkok ke dalam or twisted..

CTEV, Clubfoot, kaki ke dalam etc...

Insya Allah..Niat kita hanya satu IAITU membantu kaki anak kita pulih..

tapi bagaimana?

Haaaaa...ada sebab kenapa Allah izinkan makhlukNya untuk mencipta GOOGLE..

bukan untuk mencari pasal atau perkara yang tak berfaedah..tetapi lebih kepada membantu kita mencari jawapan..

SO LET'S GOOGLE...

Anda semua bertuah kerana banyak website dari Malaysia ada meringkaskan apa itu Clubfoot.

So kenapa saya tak jumpa Clubfoot Malaysia??

Clubfoot Malaysia ni mula2 diperkenalkan pada tahun 2008..

Ada yang masih bersekolah lagi kan masa ni?

Clubfoot Malaysia merupakan satu kumpulan sokongan yang terdiri daripada IbuBapa dari tahun 2008 yang sama2 gigih mencari, mengenali dan juga membuat self-research tentang clubfoot.

Apa yang membezakan Clubfoot Malaysia dsengan kumpulan lain?

Kami Pro-Ponseti.

Testimonial kami dari Ponseti treatment tidak kira dari Bangkok mahupon tempatan.

Kami akan kongsikan segala pengetahuan, pengalaman buruk kami semasa anak kami sendiri menjalani rawatan yang salah untuk dijadikan ikhtibar dan pengalaman yang manis apabila rawatan itu berjaya.

Apa rahsianya kejayaan kami?

Kami strict. Ikut betul2 kaedah rawatan Ponseti method.

Kami baca Ponseti.info/ dan kami bertalu2 membaca dan bertanya kepada doctor yg pakar dlm bidang Ponseti ini. In my case, Saya begitu rapat dan mempunya hubungan yg baik dgn Dr Amnuay.

Saya banyak merujuk pada beliau sekiranya ada referrral kes yang agak rumit.

Alhamdullilah, Dr Amnuay tidak pernah jemu dan tidak lokek berkongsi pendapat.

Kami tak beri harapan palsu.

Kami mengingatkan perkara yang perlu dihindarkan walau pon pedih. Ada yang terasa ada yang terambil hati. Tapi percaya lah, kami hanya mahukan yang terbaik.

Kami tidak memaksa anda tapi kami mahu anda memberi peluang kami memberikan jawapan jujur kami. 

Kami tidak membuat keuntungan atau side income dari blog atau group ini. Gerakan kami seperti NGO-NGO yang lain. 

Kami tidak perlu menjual brace. Namun begitu, kami AMAT menesyorkan pemakaian Mitchelle Brace (yang terbaik setakat ini). Doktor kami di Bangkok sendiri hanya memilih Mitchell Brace untuk frasa bracing...

Tapi memang adakan doctor yang taktau tentang kewujudan Mitchell Brace ni..itu maknanya dia  belom habis study lagi tentang Ponseti Method ni...kesian betul..

So kalau anak2 clubfoot memakai Mitchell Brace atau Dennis Brown boleh lah kami beri pendapat. Yang pakai brace brand lain tuh kami takde pakar untuk dirujuk. Tapikan better u all consider to join kami ..sebabnya kami mmg serious and strict..:)

Kenapa Mitchell Brace ? ini lah brace yang terbaik, FULL STOP!

Bukan semua brace sama?

Penggunaan dan objectives memang sama tetapi keberkesanan, penjimatan Mitchell Brace masih lebih baik dan sangat berkesan. Hey ini Dr Ponseti invent sendiri tauuuu!!

For next post, saya akan cerita serba seikit tentang Iowa Brace yang telah diperkenalkan kepada saya oleh Clubfoot Solution dengan kerjasama Ponseti International.

Teenager's Clubfoot

 So, what do u expect from a clubfoot teenagers?

For some, there will be drama..some don't..but

Hmm..as for Dania..

1. Her left foot (normal) is still 1.5 size larger than the right one. Last year we bought 2 pair of school shoes with different sizes for her. We need to replacement her prep shoes as well before the school starts.

2. Yes her right calf is still thinner than normal. I always remind her to watch her weight as her right calf may not able to carry heavy body.

3. She had episodes of 'sakit kaki' when she was busy with her school activities. Oh ya, for your info, Dania is currently at one of the boarding school in Cyberjaya. Her dorm for this year is located at the upper floor. During this pandemic, we are not allowed to help her to bring all of her luggage to the dorm. She need to settle by herself, probably her friends helped her.

4. Last year was disaster. She was in pain and I cant help her that much. According to Dr Amnuay, he didnt see any problem of her feet. She need to do a lot of stretching. Yes, we had conference meeting with Dr Amnuay in Bonda Pengetua's room.  I guess her dorsiflexion is stucked at 0.  Dania was permitted to do her feet xray as per instructed by Dr Amnuay. I bought her so many painless support item while waiting for her school to allow this xray appointment.

5. Obviously, she is lazy to do stretching at school. Currently she need to be reminded and warned at home . She knew the consequences of not getting the feet stretched but being teenagers, it will never interest her.

So, my advise to you, keep on doing the stretching as regular as you can. Ask them to climb up the stairs, do some stretching using heel and sole. Make it as a routine, make it as a habit. Good habit last longer.

till my next post..:)

2021 Virtual World Clubfoot Day

It has been a while...I know..

But...how is this Covid-19 pandemic treat u so far?

Many has stop their treatment..

Many has skipped their follow up..skipped the casting series..

Many has defer their tenotomy n defer their total treatment to later date..

Our doctor in Bumrungrad has started his tele-medic appointment so that many of us can share their progress with him without flying to Bangkok..

Whatever phase you are, May Allah set ease your effort and give you courage to keep the battle alive..Insya Allah..

Alhamdullilah, as stated earlier, we had our 3rd June online meeting for the remarkable day.

We are so honour to have Dr Amnuay to join the meeting.

Thank you endlessly to Sal & Ess for working so hard to do the testing before the day and making sure all went smooth as we planned.