Positional Clubfoot

'tapi puan, saya ada surat doktor yang mengatakan anak saya ada CTEV..'

'puan, anak kaki sy bengkok tak macam kaki baby lain'..

'anak saya dah dipakaikan kasut khas'

'boleh elok ke kaki anak saya?'

'doktor kata anak saya tak perlu simen'

'ohh takpe puan, kaki anak saya sudah pulih'

Allahuakhbar..

Dah berkali saya terangkan perbezaan positional vs structural clubfoot..

yang kami perjuangkan Ponseti Method for clubfoot ini adalah clubfoot yg involved structural kaki itu sendiri. So kalau positional kita tak perlu apply Ponseti Method..

Positional clubfoot keadaan tapak kaki normal dan flexible..

Manakala structural clubfoot, kakinya twisted, rigid, stiff, dan tak flexible.

Sebab tu saya minta gambar upon approval to join Clubfoot Malaysia.

kalau positional tak perlu pening kepala utk baca all the info ttg clubfoot..Sekadar nak tahu rupa dah cukup...Insya Allah u all tak akan lalui process yg lama macam kami..so berlapang dada..

anyway, both positional and structural clubfoot are TREATABLE.

So why buy from anyone else? - MD Orthopedics Mitchell Ponseti Brace

It has been 14 years that I have introduced Mitchell-Ponseti brace to Malaysian community..

Dr Amnuay yang tolong ukur masa tu, kami yang order straight from Iowa, US.

Dulu takde online shopping macam sekarang, and I remember we've  emailed to Brittany and we transferred money or payment was done using credit platform..2 kali je purchase...

Dengan Mitchell brace ni kita tak perlu ukur ngam2..Kita boleh lebihkan 1-3cm..boleh pakai lama sikit..Dania ads 2 braces je  dlm almost 5 tahun pakai..

So hangpa yang konon kene sampuk beli brace brand L yang claim lagi murah dari Mitchell Ponseti, tapi kene ganti selalu tuh nampak gaya dah kene tipu..😂😂

Brace Mitchell ni kita boleh ukur anggaran, and boleh lebihkan dlm 1-3cm..sy perasan ada yang kata terbeli besar..tapi jangan lah memandai yang baby umur 3 bulan u pegi beli size 6 size 10 buat apa??

boleh je baby setahun beli size 1 atau 2 bagi dia pakai sampai lencun...

2-3 tahun lepas saya ada jumpa imitation of Mitchell Ponseti ni yang claim konon dia pon sama bagus macam Mitchell Ponseti brace. Dorang claim effectiveness dia sama..siap dah ada distributor kat Malaysia ni...siap canang kat doktor they have ready stock..hahaha

Saya pon hairan but today, one of my clubfoot experience parents exposed that every single parts of Mitchell Brace ni dah dipatentkan..Maksudnya APA??!!! yang beli brand L tuh umpama beli barang imitation a.k.a barang tiruan..yang mana their testimonial pon boleh kita ragui..

8 out of 10 clubfoot physician in USA prescribed Mitchell Ponseti braces for their patient, so doktor-doktor yang claim tak tau Mitchell Ponseti ni sambung tidur lagi ke macam mana?

Sibuk pulak nak suruh patient pakai Dobbs Bar la apa lah...tapi treatment pon masih ke laut..

Daku bukan taksub tau tapi memang nyata..There is only ONE GOLD STANDARD PONSETI METHOD CLUBFOOT ORTHOTICS which is MITCHELL PONSETI !!

Mitchell Brace ni dah lama dah in the market.. dah patented on 2007 (dorang apply 2004) ..Dania start pakai 2008..

So, as dulu til now, and once again I am firm and confident, Mitchell Brace is the BEST CLUBFOOT BRACE ever!!

Memula hairan juga kenapa MD ni takde wakil jualan in Asia..Now baru faham..even pon dorang tu jauh, delivery timing was just 5-7 days from the date of purchase.

Oklah juga delivery timing dari u beli kat shopper or even I beli telekung dari Siti Khadijah pon 2 weeks baru sampai..

Disclaimer : Saya bukan wakil jualan Mitchell Ponseti ni..tapi saya sangat recommend braces ni..so jangan kene tipu...😉

Kepentingan menyertai Clubfoot Malaysia

First of all..berlapang dada bila kita dapat tahu kaki anak bengkok ke dalam or twisted..

CTEV, Clubfoot, kaki ke dalam etc...

Insya Allah..Niat kita hanya satu IAITU membantu kaki anak kita pulih..

tapi bagaimana?

Haaaaa...ada sebab kenapa Allah izinkan makhlukNya untuk mencipta GOOGLE..

bukan untuk mencari pasal atau perkara yang tak berfaedah..tetapi lebih kepada membantu kita mencari jawapan..

SO LET'S GOOGLE...

Anda semua bertuah kerana banyak website dari Malaysia ada meringkaskan apa itu Clubfoot.

So kenapa saya tak jumpa Clubfoot Malaysia??

Clubfoot Malaysia ni mula2 diperkenalkan pada tahun 2008..

Ada yang masih bersekolah lagi kan masa ni?

Clubfoot Malaysia merupakan satu kumpulan sokongan yang terdiri daripada IbuBapa dari tahun 2008 yang sama2 gigih mencari, mengenali dan juga membuat self-research tentang clubfoot.

Apa yang membezakan Clubfoot Malaysia dsengan kumpulan lain?

Kami Pro-Ponseti.

Testimonial kami dari Ponseti treatment tidak kira dari Bangkok mahupon tempatan.

Kami akan kongsikan segala pengetahuan, pengalaman buruk kami semasa anak kami sendiri menjalani rawatan yang salah untuk dijadikan ikhtibar dan pengalaman yang manis apabila rawatan itu berjaya.

Apa rahsianya kejayaan kami?

Kami strict. Ikut betul2 kaedah rawatan Ponseti method.

Kami baca Ponseti.info/ dan kami bertalu2 membaca dan bertanya kepada doctor yg pakar dlm bidang Ponseti ini. In my case, Saya begitu rapat dan mempunya hubungan yg baik dgn Dr Amnuay.

Saya banyak merujuk pada beliau sekiranya ada referrral kes yang agak rumit.

Alhamdullilah, Dr Amnuay tidak pernah jemu dan tidak lokek berkongsi pendapat.

Kami tak beri harapan palsu.

Kami mengingatkan perkara yang perlu dihindarkan walau pon pedih. Ada yang terasa ada yang terambil hati. Tapi percaya lah, kami hanya mahukan yang terbaik.

Kami tidak memaksa anda tapi kami mahu anda memberi peluang kami memberikan jawapan jujur kami. 

Kami tidak membuat keuntungan atau side income dari blog atau group ini. Gerakan kami seperti NGO-NGO yang lain. 

Kami tidak perlu menjual brace. Namun begitu, kami AMAT menesyorkan pemakaian Mitchelle Brace (yang terbaik setakat ini). Doktor kami di Bangkok sendiri hanya memilih Mitchell Brace untuk frasa bracing...

Tapi memang adakan doctor yang taktau tentang kewujudan Mitchell Brace ni..itu maknanya dia  belom habis study lagi tentang Ponseti Method ni...kesian betul..

So kalau anak2 clubfoot memakai Mitchell Brace atau Dennis Brown boleh lah kami beri pendapat. Yang pakai brace brand lain tuh kami takde pakar untuk dirujuk. Tapikan better u all consider to join kami ..sebabnya kami mmg serious and strict..:)

Kenapa Mitchell Brace ? ini lah brace yang terbaik, FULL STOP!

Bukan semua brace sama?

Penggunaan dan objectives memang sama tetapi keberkesanan, penjimatan Mitchell Brace masih lebih baik dan sangat berkesan. Hey ini Dr Ponseti invent sendiri tauuuu!!

For next post, saya akan cerita serba seikit tentang Iowa Brace yang telah diperkenalkan kepada saya oleh Clubfoot Solution dengan kerjasama Ponseti International.

How to join FB Clubfoot Malaysia

Every single request to join FB Clubfoot Malaysia will be filtered.

Only those genuinely has clubfoot children (structural) will be approved.

You will be requested to give me your child's feet photo.

Why I need the photo? 

Other than to ensure the feet MUST be structural clubfoot instead of positional.

Positional clubfoot is not a real clubfoot. Their heel is normal, it may need physio or maybe for severe cases, it may need 1x casting. This positional clubfoot is only the babies' habit curling their feet inward.

Tapi yg ramai request currently is the positional clubfoot.

Some show me bowleg and many share with me the suspected clubfoot which I can only see normal heel and sole. Have you ever google on clubfoot image at your browser? Ada compare tak?

If not yet, please do it now.

To become our FB Clubfoot Malaysia member, you are required to answer 2 questions 

1. Andakah anak and disahkan oleh doktor mempunyai masalah clubfoot?

Jika benar, type yes. 

Jika tidak, we will definitely decline first until it is confirmed. We received many request from preggie mommies. Bukan tak nak approve, relax2 dulu. Safely deliver, and get it confirm then you can request.

Sorry we can longer accept those who just want to join because they want to know more.

Earlier we have accepted few, end up these people are actually try to intrude and posted unrelated topic other than Clubfoot.

2. Adakah and mencari kumpulan sokongan bagi permasalahan clubfoot?

Jika benar, we will approved.

Jika tidak, why are you requesting ?

Just to remind to all who is interested to request to become our member,

" Establised since 2009 with basic knowledge of Ponseti Method. We are growing as ONE group of Malaysian parents eith our clubfoot community together - coaching, sharing our best experience and knowledge which hopefully can be benefited to every single clubfoot family in Malaysia. 

Many Malaysian clubfoot families has benefited from this group and those tiny feet has successfully walk like any other normal kids....."

With this , as we are the strong supporter of Ponseti method, we will advised strictly based on what we have learnt from Ponseti.info/, from our physical doctors (of course the certified Ponseti doctor) and based on successful testimonials.

NO splints!

NO PMR!

NO endless serial casting!

NO anti Ponseti!!

No hard selling on your pre-loved braces.

Only Mitchell braces with Ponseti bar and Dennis Brown Bar are allowed to be exchange or sell at this moment. Other than these two, which we do not have the head up from Iowa Ponseti International, we will not recommend.

Any posting NOT related to Ponseti WILL BE REMOVED and BLOCKED.

Next posting I will share on Iowa Brace which was developed by a team headed by Dr Marcuende.

Till next post...

Dania's 1st masterpiece on Clubfoot

 

Hi & Salam..

Another entry for this year..

Yg mana ada printer, bole print and baca..

Ini adalah salah satu project yang anak Clubfoot saya hasilkan untuk assignment sekolah.

She said menitik air mata bila buat resdarch pasal kaki sendiri..

Allahuakhbar..

Ramai ibu2 diluar sana menangis dan meraung melihat anak yg baru lahir berkeadaan kaki sebegini..betul bukan?

Percayalah...clubfoot is treatable..kena betul caranya, kena jumpa org yg seangkatan untuk memberikan nasihat yg baik dan berguna..Insya Allah,,

Doakan terbuka hati Dania until menjadi pakar Ortho kanak2 yg baik dan pakar mengenai clubfoot.

One day in later life, bole share experience anak2 and make him or her proud of our achievement.

Aaminn

2021 Virtual World Clubfoot Day

It has been a while...I know..

But...how is this Covid-19 pandemic treat u so far?

Many has stop their treatment..

Many has skipped their follow up..skipped the casting series..

Many has defer their tenotomy n defer their total treatment to later date..

Our doctor in Bumrungrad has started his tele-medic appointment so that many of us can share their progress with him without flying to Bangkok..

Whatever phase you are, May Allah set ease your effort and give you courage to keep the battle alive..Insya Allah..

Alhamdullilah, as stated earlier, we had our 3rd June online meeting for the remarkable day.

We are so honour to have Dr Amnuay to join the meeting.

Thank you endlessly to Sal & Ess for working so hard to do the testing before the day and making sure all went smooth as we planned.

How to prevent relapse?

Honestly, only God knows...

Tapi kita boleh usaha..

what we did?

We prolong bracing time.
As long as our baby tolerable with the bracing time, continue bracing as long as you can.
We maintain 23 hours for 3-4 months, 16-18 hours for for 4 months juga..
Then when Dania starts walking using knee, baru kami pendekkan 12-14 hours..
Meaning night time 10 hours plus 3-4 hours day time during nap time, or whenever she is not fussy.
Then we all continue night time bracing until she is 5 years old.

So don't get too excited bila doctor sure reduced time or discharged bracing time.
Sebabnya, bila kaki dah start stiff, Anak dah biasa tak pakai brace, dah lasak berjalan, nak pakaikan brace balik memang payah,

So masa baby ni lah kita boleh control bracing time dia.
Ni cara saya lah..Dania pernah relapse masa kat HKL.
Nak start all over balik is too painful..

Doctor hanya recommend bila sepatutnya reduce bracing time and also discharged.
Tapi kita boleh je customised.

Dania started bracing when she was 1 year 2 months old. After 5 cast in Bangkok, she starts wearing Mitchell Brace on 6th week of treatment. Kami bawak je kemana aje kami pergi with her brace ON..

Jangan malu dengan anak pakai brace...

TIPS TO PREVENT RELAPSE : PROLONG THE BRACING TIME !!

Clubfoot Malaysia 2017 Family Day

Alhamdullilah, we just had our 1st Clubfoot Malaysia Family Day @ Agrotek Garden Resort Hulu Langat. Cantik tempatnya. Air sungai bersih dan jernih, pemandangan kehijauan, dan remote area. Sesuai kalau plan nak buat team building, family day or gatherings.

Enam keluarga participated, 3 new faces and 3 old friends. This time kami decide nak berkumpul sesama kami tanpa kehadiran para doctor.
Sal & family (siap bawak mak & adik), Munna & keluarga comelnya, Syed & Irfan, Nadia & keluarga dan juga Aidilla bersama Ibu dan anaknya Luqman.

We had borak2 santai, minum petang, then continue borak lagi during BBQ night session.

Bercerita pasal clubfoot takkan habis sebab setiap pengalaman itu berbeza but saya hargai members yang data hadir kerana mereka peka dengan perkembangan anak dan ingin mengetahui lagi apakah langkah seterusnya dari segi penjagaan dan do's & don't.

So the next day, kami Anak senamrobik & sukaneka.

Small gathering tapi meriah.

Boleh belek2 kaki dan bincang apa yg perlu diperhatikan sekiraanya kaki tidak berkeadaan baik.

Kalau advise dlm FB or WhatsApp melalui gambar tau video, payah sikit nak tengok betul2.

So join lah kalau ada peluang, kalau kaki anak dah okay, kita kongsi pengalaman.

Tak guna pon jadi pon jadi silent readers..kan berpesan2 until kebaikan lebih bermanfaat?

Till we meet again ..