Saturday, September 30, 2017

Persediaan untuk rawatan Ponseti Method

Doctor pakar sendiri confirm anak anda mengalami clubfoot, talipes, ctev whatever they call it.
Yang penting bukan nurse, or bukan org lain yang confirmkan.



Mula2 yg perlu anda lakukan,

1, AMBIL GAMBAR KAKI ANAK DARI PANDANGAN ATAS dan CATAT TARIKH
untuk memudahkan kelak anda perlu membuat perbandingan selepas simen dibuka untuk simen berikutnya.

2. LOG IN GOOGLE, CARIK INFO BASIC MENGENAI CLUBFOOT, BANDINGKAN KAKI ANAK DENGAN GAMBAR DI DALAM INTERNET.
until memudahkan pemahaman mengenai Clubfoot.

3. KENAL PASTI JENIS CLUBFOOT ANAK ANDA DAN TANYAKAN PAKAR MENGENAI RANCANGAN YANG TERBAIK UNTUK ANAK 
lebih memudahkan until mengenal pasti sama ada Pakar Ortho tersebut mempunyai kemahiran mengenai kaedah Ponseti.
Sekiranya beliau ada menyebut tentang SPLINT atau Postero Medial Release PMR iaitu pembedahan yang sancta invasive atau lebih teruk beliau tidak melayan persoalan/pertanyaan anda, saya sarankan anda perlu mencari doctor pakar padetrik Ortho yang lebih baik.
Kalau doctor tersebut tidak mampu nak terangkan, maka beliau bukan doctor yang bagus until merawat anak anda.



4. AKHIR SEKALI, BANYAKKAN BERDOA SEMOGA PERJALANAN RAWATAN INI BERJALAN LANCAR DAN DIPERMUDAHKAN. 
Selain doa, Ibu sertã ayah dan juga keluarga terdekat perlu memberi kata2 positif dan juga kesabaran yang tinggi ketika pemasangan simen, penjagaan simen dan juga keadaan anak ketika bersimen.

Nanti sambung lagi.

Thursday, September 28, 2017

How to prevent relapse?

Honestly, only God knows...

Tapi kita boleh usaha..

what we did?

We prolong bracing time.
As long as our baby tolerable with the bracing time, continue bracing as long as you can.
We maintain 23 hours for 3-4 months, 16-18 hours for for 4 months juga..
Then when Dania starts walking using knee, baru kami pendekkan 12-14 hours..
Meaning night time 10 hours plus 3-4 hours day time during nap time, or whenever she is not fussy.
Then we all continue night time bracing until she is 5 years old.

So don't get too excited bila doctor sure reduced time or discharged bracing time.
Sebabnya, bila kaki dah start stiff, Anak dah biasa tak pakai brace, dah lasak berjalan, nak pakaikan brace balik memang payah,

So masa baby ni lah kita boleh control bracing time dia.
Ni cara saya lah..Dania pernah relapse masa kat HKL.
Nak start all over balik is too painful..

Doctor hanya recommend bila sepatutnya reduce bracing time and also discharged.
Tapi kita boleh je customised.



Dania started bracing when she was 1 year 2 months old. After 5 cast in Bangkok, she starts wearing Mitchell Brace on 6th week of treatment. Kami bawak je kemana aje kami pergi with her brace ON..

Jangan malu dengan anak pakai brace...
TIPS TO PREVENT RELAPSE : PROLONG THE BRACING TIME !!

Tuesday, September 26, 2017

Clubfoot Malaysia 2017 Family Day

Alhamdullilah, we just had our 1st Clubfoot Malaysia Family Day @ Agrotek Garden Resort Hulu Langat. Cantik tempatnya. Air sungai bersih dan jernih, pemandangan kehijauan, dan remote area. Sesuai kalau plan nak buat team building, family day or gatherings.





Enam keluarga participated, 3 new faces and 3 old friends. This time kami decide nak berkumpul sesama kami tanpa kehadiran para doctor.
Sal & family (siap bawak mak & adik), Munna & keluarga comelnya, Syed & Irfan, Nadia & keluarga dan juga Aidilla bersama Ibu dan anaknya Luqman.


We had borak2 santai, minum petang, then continue borak lagi during BBQ night session.




Bercerita pasal clubfoot takkan habis sebab setiap pengalaman itu berbeza but saya hargai members yang data hadir kerana mereka peka dengan perkembangan anak dan ingin mengetahui lagi apakah langkah seterusnya dari segi penjagaan dan do's & don't.

So the next day, kami Anak senamrobik & sukaneka.




Small gathering tapi meriah.
Boleh belek2 kaki dan bincang apa yg perlu diperhatikan sekiraanya kaki tidak berkeadaan baik.
Kalau advise dlm FB or WhatsApp melalui gambar tau video, payah sikit nak tengok betul2.
So join lah kalau ada peluang, kalau kaki anak dah okay, kita kongsi pengalaman.

Tak guna pon jadi pon jadi silent readers..kan berpesan2 until kebaikan lebih bermanfaat?

Till we meet again ..

Sunday, August 13, 2017

Clubfoot Malaysia Family Day - Register now!!


Dear readers,

If you are one of clubfoot parents, please join us Clubfoot Malaysia Family Day 2017!!

Spread the love!!





Tuesday, June 28, 2016

Appointment 3rd June - follow up in Bangkok

Salam Ramadhan and raya is soon..

We went to Bangkok on 2nd June for Dania's follow up appointment.
We have been struggling to get Dania stretch to ensure she will have the minimum dorsiflexion. 


She is already 140cm tall. When u first saw her in this blog she just turn 1 and bow she is 9 years old.


She can walk and she squat like any other kids but her running style is so funny.


There is no improvement of her dorsiflexion.
In fact her dorsiflexion is zero. Nevertheles her dorsiflexion for non clubfoot feet is only 10' degree.

Even her flatfoot is worst and Dr Amnuay taught her on how to exercise to minimise her flat foot.

She need to continue stretching and also running to keep her muscle strong and improve her dorsiflexion.

Dr Amnuay also told us that there is official guidelines to improve the condition of the dorsiflexion but Dania need to do stretching consistently.

We met 2 Malaysian families in Bumrungrad. They will be more families will come to Bangkok for help if there is no improvement in Malaysia's treatment method.

I still see splints, and I still hear many babies were in casting for many many times. I also still hear failure of the treament e.g. Relapse etc.


Dania is growing up rapidly but Malaysia treatment still slow in improvement progress. The babies need help. Why can't Malaysia Orthopedics throw all the splints and practise the correct Ponsti Methods once and for all??

Things to shout about on 17 December.








Thursday, March 17, 2016

Sorry, it's been 4 years!

I didn’t write in this blog for so many years and March 2012 was the last one. My version is very much different from Kak Ina because Adam was reluctant to wear FAB, DB Bar, we faced so many challenges resulting discontinuation of treatment at hospital since he was 4 years old! Click here to read the post. Wow that means it’s been 4 years since my last post.

My Adam now is 8 years old. He went to school like normal kids, he walks, he runs, he climbs, he jumps like any other kids as well, it just that his both feet still turn inwards whenever he does the activities. He is getting used to it even though he can still correct his feet while standing whenever I asked him to. As a mother, I never stop worrying. Deep inside, it hurt so much thinking I am not able to give him treatment that he deserved and I wonder whether it is too late now? I made some research recently and I think I found “something” that might be able to help Adam. I’ll share with you later, maybe in next post – no, it’s not going to take another few years, lol. Before that let me share what we’ve gone through after my last post in 2012. If you have read the post, it was my intention to continue treatment, it just that I do not know where to go whether to Singapore or Bangkok (which is actually not into our consideration due to cost and time factor).

We went to KK hospital in Singapore to seek treatment from one of Ponseti method certified doctor (not sure whether he is still certified Ponseti doctor), Dr Kevin Lim on May 9, 2012. I sent an email to the Doctor and after that receive appointment schedule to choose. During treatment the doctor said Adam has mild residual metatarsus adductus which personally I do not know what was that and we just follow doctor advise to apply casting. I was shocked at the moment when the Doctor said he wants to apply fibre glass casting instead of plaster casting which is not accordance to Ponseti method. It costs us about MYR1000 (after currency conversion from SGD) for both feet casting BELOW KNEE LENGTH. He said my kid already 4 years old and would be difficult to walk around, etc, and I just nod my head dumbly because my mind was flying somewhere else, thinking that I made a wrong decision by seeking treatment here. We never come back for follow up treatment and the casts were removed by my husband at home.

In August 2012, I discussed with my husband to bring Adam to Bangkok so that we can get treatment from Dr Amnuay. He seems reluctant to agree at the first place and later agreed when I said I need 2nd opinion to treat our son. At least we try not to let him left untreated. I made an appointment through Bumrungrad website, we chose appointment date on November 6, 2012 @ 0720hrs and received appointment confirmation. I purchased flight tickets for 4 of us. Few days after that I received an email from the hospital saying that Dr Amnuay would not available on the date of appointment and I replied them saying that I’ve bought flight ticket after received their appointment schedule confirmation.  The next day it was a reply from Dr Amnuay forwarded by the hospital Email Management, asked us to come.  So I arranged all the necessities until suddenly I was inform via text message that Dr Amnuay has taken leave (if I’m not mistaken) and other Doctor will replace him to examine Adam. I still remembered I just checked in to the hotel (a day before appointment) and was walking down the street towards BTS Nana and I can see clearly Bumrungrad hospital when I received the text message (international roaming) from the hospital. I was so frustrated and my husband decided not to go for the appointment so we just sightseeing Bangkok, did a little shopping, find a good meal + halal place, went to Pattaya for a night and our total stay are  4 days + 3 nights. J At least it was not so stressful over our disappointment.. Consider myself not lucky as most of you, who managed to get Dr Amnuay, ya..



Back to Malaysia, I dare not tell my husband about going to Bumrungrad again. I just bought new Markell shoes for Adam and we put on him while he sleeps at night. It can lasts on him for about an hour only before he cried and struggled to get the shoes off from his feet. Since then there’s no more treatment until now..

So it's now 2016 and I want to see an improvement on Adam's feet! 

Tuesday, January 26, 2016

Dania runs!

Have you ever give up on casting, night braces ?
Have you ever thought that your clubfoot baby is not able to walk or run like any other baby?
Have you ever thought that one day you will run with your clubfoot child?

We did!
We run Cyberjaya !!!




 
Free counter and web stats