Tuesday, June 28, 2016

Appointment 3rd June - follow up in Bangkok

Salam Ramadhan and raya is soon..

We went to Bangkok on 2nd June for Dania's follow up appointment.
We have been struggling to get Dania stretch to ensure she will have the minimum dorsiflexion. 

She is already 140cm tall. When u first saw her in this blog she just turn 1 and bow she is 9 years old.

She can walk and she squat like any other kids but her running style is so funny.

There is no improvement of her dorsiflexion.
In fact her dorsiflexion is zero. Nevertheles her dorsiflexion for non clubfoot feet is only 10' degree.

Even her flatfoot is worst and Dr Amnuay taught her on how to exercise to minimise her flat foot.

She need to continue stretching and also running to keep her muscle strong and improve her dorsiflexion.

Dr Amnuay also told us that there is official guidelines to improve the condition of the dorsiflexion but Dania need to do stretching consistently.

We met 2 Malaysian families in Bumrungrad. They will be more families will come to Bangkok for help if there is no improvement in Malaysia's treatment method.

I still see splints, and I still hear many babies were in casting for many many times. I also still hear failure of the treament e.g. Relapse etc.

Dania is growing up rapidly but Malaysia treatment still slow in improvement progress. The babies need help. Why can't Malaysia Orthopedics throw all the splints and practise the correct Ponsti Methods once and for all??

Things to shout about on 17 December.

Thursday, March 17, 2016

Sorry, it's been 4 years!

I didn’t write in this blog for so many years and March 2012 was the last one. My version is very much different from Kak Ina because Adam was reluctant to wear FAB, DB Bar, we faced so many challenges resulting discontinuation of treatment at hospital since he was 4 years old! Click here to read the post. Wow that means it’s been 4 years since my last post.

My Adam now is 8 years old. He went to school like normal kids, he walks, he runs, he climbs, he jumps like any other kids as well, it just that his both feet still turn inwards whenever he does the activities. He is getting used to it even though he can still correct his feet while standing whenever I asked him to. As a mother, I never stop worrying. Deep inside, it hurt so much thinking I am not able to give him treatment that he deserved and I wonder whether it is too late now? I made some research recently and I think I found “something” that might be able to help Adam. I’ll share with you later, maybe in next post – no, it’s not going to take another few years, lol. Before that let me share what we’ve gone through after my last post in 2012. If you have read the post, it was my intention to continue treatment, it just that I do not know where to go whether to Singapore or Bangkok (which is actually not into our consideration due to cost and time factor).

We went to KK hospital in Singapore to seek treatment from one of Ponseti method certified doctor (not sure whether he is still certified Ponseti doctor), Dr Kevin Lim on May 9, 2012. I sent an email to the Doctor and after that receive appointment schedule to choose. During treatment the doctor said Adam has mild residual metatarsus adductus which personally I do not know what was that and we just follow doctor advise to apply casting. I was shocked at the moment when the Doctor said he wants to apply fibre glass casting instead of plaster casting which is not accordance to Ponseti method. It costs us about MYR1000 (after currency conversion from SGD) for both feet casting BELOW KNEE LENGTH. He said my kid already 4 years old and would be difficult to walk around, etc, and I just nod my head dumbly because my mind was flying somewhere else, thinking that I made a wrong decision by seeking treatment here. We never come back for follow up treatment and the casts were removed by my husband at home.

In August 2012, I discussed with my husband to bring Adam to Bangkok so that we can get treatment from Dr Amnuay. He seems reluctant to agree at the first place and later agreed when I said I need 2nd opinion to treat our son. At least we try not to let him left untreated. I made an appointment through Bumrungrad website, we chose appointment date on November 6, 2012 @ 0720hrs and received appointment confirmation. I purchased flight tickets for 4 of us. Few days after that I received an email from the hospital saying that Dr Amnuay would not available on the date of appointment and I replied them saying that I’ve bought flight ticket after received their appointment schedule confirmation.  The next day it was a reply from Dr Amnuay forwarded by the hospital Email Management, asked us to come.  So I arranged all the necessities until suddenly I was inform via text message that Dr Amnuay has taken leave (if I’m not mistaken) and other Doctor will replace him to examine Adam. I still remembered I just checked in to the hotel (a day before appointment) and was walking down the street towards BTS Nana and I can see clearly Bumrungrad hospital when I received the text message (international roaming) from the hospital. I was so frustrated and my husband decided not to go for the appointment so we just sightseeing Bangkok, did a little shopping, find a good meal + halal place, went to Pattaya for a night and our total stay are  4 days + 3 nights. J At least it was not so stressful over our disappointment.. Consider myself not lucky as most of you, who managed to get Dr Amnuay, ya..

Back to Malaysia, I dare not tell my husband about going to Bumrungrad again. I just bought new Markell shoes for Adam and we put on him while he sleeps at night. It can lasts on him for about an hour only before he cried and struggled to get the shoes off from his feet. Since then there’s no more treatment until now..

So it's now 2016 and I want to see an improvement on Adam's feet! 

Tuesday, January 26, 2016

Dania runs!

Have you ever give up on casting, night braces ?
Have you ever thought that your clubfoot baby is not able to walk or run like any other baby?
Have you ever thought that one day you will run with your clubfoot child?

We did!
We run Cyberjaya !!!

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