Calling one

Many of my friends/relatives called me and they said they have friends who had clubfoot problem.

I just can share my experience, my simple knowledge..Somehow how I wish I can do more.

I'm setting up a fund with our 1st objective to introduce Malaysian Clubfoot official website.Latest news, we have registered the website..:D

We've got our initial fund from our Thai Silk Sales. We will continue to find a way to generate fund for this small charity project.

Other than that, we can help those low income earners on travelling subsidy for clubfoot treatment. Dania would love to meet all of her friends.

Then my next target is to have a pool Ponseti FAB shoes. So that people can rent intead of buying.

I have a lots of plan in mind and I need sponsors.

I need our own local physician to assist me on consulting this parents. Why can't any of them help me?Is it too much to ask?

Dania's 2nd FAB

When her dad told her she got a new shoes, she was so excited.I'm a bit worry that she may not get it. Once she open the box, you can see her face was so excited seeing her new FAB..fuhhhss..

This is her new Ponseti Shoe Size 7/8. She has been in this corrective shoes since she was 14 months old. For record, now she is coming to 36 months old. She is wearing the shoe every night without fail (yet!!) and we are accommodating at least 10 hours per night. But sometimes it less.

We are quite lucky that Dania is very much cooperative when wearing the shoe except that there was time she was crying in pain at night. I think she had a nightmare...:D

So, guys don't give up ya!!

Another Relapse

My lil Adam D is having another relapse i think.. it's been quite some time since he began to walk and we are still thinking whether to continue treatment at HUKM or not.

Frankly speaking, HUKM is not to be blamed on his foot relapsing. after the tenotomy and follow ups treatment, Adam started to wear FAB and we succesfully made him wear it until he started to walk and he refused to wear the FAB by throwing so much of tantrums which finally the FAB torn because of him and became useless at all.

and since then, he never wear any FAB and we also stop from going for follow up treatment at HUKM. i must say that i am not strong as Ina mentally and.. financially. buying another shoes surely costs us pretty much plus travelling to/fro for his treatment and we are currently in a situation where we need to save money due to some reason. and of course it hurts to see him walking in such way.

we had reached to the extend where we had gave up hopes and can just watch him walk in such condition. he can walk, he can run (quite fast u can't imagine) but of course his feet (especially the left feet) obviously we can see it turned inwards whenever he stepped. i do not know when is the right time to start his treatment again and i just don't know what to do anymore.

* i'm a bit emotional when writing this posting now.

Dania 1st jogging activity

Dania has been walking for a year, jumping around, she can squat, she can dance and she can do jumping frog. Indeed a corrected clubfoot feet would not stop her in what she want and loves to do.

See from the back. No one cam ever think that she was born with unilateral clubfoot. Alhamdullilah, she is like any other normal kids..:)

Dania 1st Anniversary of walking

I think not many parents out there will celebrate their children 1st Anniversary of walking. A year ago, Dania surprised us with her ability to stand up and walk like a champion. She was 22months old when she had her 1st independent walks.

I'm proud of her. After 22 months of struggling to treat her clubfoot problem, she finally walks.I used to be worried about her but now I'm confident clubfoot children are like any other normal kids. Watching her walking is priceless. She is my spirit and love of my life.

We will remember 14th February not because of Valentine's day but this is the day Dania finally walks!!!

Aktiviti Physio utk clubfoot

If your clubfoot child is still on brace, you are advised to do some light exercise to ensure the feet is soft and dorsiflexion is improved. Dorsiflexion tuh adalah pergerakan kaki apabila tapak kaki ditolak dari permukaan rata ke arah keting kaki. Lakukan pada waktu pagi dan sebelum tido.

Kaki Dania yang ditolak keluar (outwards direction)

Dan kaki ditolak keatas untuk mendapat angle yang baik. Cara ini akan membolahkan kaki anak anda flexible ketika dia menyangkung (squat).

Other than this exercise, for those clubfoot child yg dah started walking, u can ask them to play run & catch, Perhatikan cara mereka mengambil bola. Aajar anak menyangkung (squatting) also good. I'll post on how I teach Dania squat later...Keep on exercise you child's feet!!

Ke Bangkok

Kami akan ke Bangkok lagi untuk kali ke 9 kalau tak silap..:)
Updates will be later.